The IDEA League UK is an independent UK charity (registration number 1128289) dedicated to improving the lives of children and young adults living with Dravet Syndrome through medical research, education and awareness and appropriate support.

Dravet Syndrome is a catastrophic neurological condition causing severe seizures alongside other conditions such as learning disability, ataxia and autism.

We are a 100% volunteer run organisation working alongside the US based organisation, The IDEA League, but operating solely within the United Kingdom.

There is currently no cure for Dravet Syndrome and sadly children are all too often mis-disgnosed. It is our mission to change that.