We are the UK arm of an international non-profit charitable organization (IDEA League) of parents and professionals, united and dedicated to funding research, providing support to families to improve quality of life for affected individuals and families, and finding a cure for Dravet Syndrome.

Our Mission

To promote awareness, understanding and research regarding Dravet Syndrome and related genetic, febrile sodium channel epilepsies and to provide resources and support to improve the quality of life for affected individuals and families in the UK. Our IDEAL is to find a cure.

Our Objectives

• To fund medical research into Dravet Syndrome and other related genetic sodium channel epilepsies
• To advance the education of the medical community in the subject of Dravet Syndrome, prompting accurate and early diagnosis
• To support families affected by Dravet Syndrome through financial assistance, emotional support, education and practical advice